Alyson reached out to the charity over 25 years ago to source information on hypertrophic cardiomyopathy, as her husband had been recently diagnosed.
The information and telephone support available provided invaluable information on the condition and the screening process once their sons were born. In 2019 the gene was identified in the family, with one of her grown up children identified as a carrier.
With a professional background in Corporate Social Responsibility, and 18 years’ experience as a Fundraising Manager, Alyson is passionate to see the charity grow and increase awareness in the community.