Sheffield & South Yorkshire Support Group

sheff sg
This support group based in Sheffield is for people with any form of cardiomyopathy, their family members, friends and supporters. 

This group is run by trained volunteer Julie Taylor (pictured on the left in the photo below).

Julie has been a Support Group Leader since March 2019 and has established a great group of members who too have become friends and continue to support each other.

In the wake of the COVID-19 pandemic, this group will now alternate between in-person and online (using Zoom) meetings, which will provide more flexibility for those members who live further away, do shift work, etc.

 

Julie

Julie’s Story- Julie has ARVC and was diagnosed in 1993. This was identified as genetic in 2009 following the sudden death of her sister in 2007. She had an ICD fitted in 2010 as a precaution, which was changed to an S-ICD in 2018. Julie retired from the NHS in November 2023 after 44 years service and has recently been elected a patient governor at Sheffield Teaching Hospitals NHS Foundation Trust. She is a Heart to Heart Support Volunteer for the charity and a patient representative on the BHF CureHeart project to find a cure for inherited cardiomyopathies. 


 

Next meeting(s)

  • Thursday 30th January 2025  7-9pm

    Online

    Speaker: Dr Klaus Witte (Consultant Cardiologist Leeds Teaching Hospitals NHS Trust) 

    Topic: Research into Mitral Regurgitation in Cardiomyopathy and a Q&A session 

     

 

Future meetings  

TBC

 

In person meetings are held at:

Venue:

Burton Hall

The Burton Street Foundation

57 Burton Street

Sheffield S6 2HH

Facilities

Wheelchair access, free parking, refreshments

 

 

Christie

For details of how to join this meeting, or for more information about this support group, please contact our Services team:

services@cardiomyopathy.org