Sheffield & South Yorkshire Support Group

This support group based in Sheffield is for people with any form of cardiomyopathy, their family members, friends and supporters.
This group is run by trained volunteer Julie Taylor (pictured on the left in the photo below).
Julie has been a Support Group Leader since March 2019 and has established a great group of members who too have become friends and continue to support each other.
In the wake of the COVID-19 pandemic, this group will now alternate between in-person and online (using Zoom) meetings, which will provide more flexibility for those members who live further away, do shift work, etc.

Julie’s Story- Julie has ARVC and was diagnosed in 1993. This was identified as genetic in 2009 following the sudden death of her sister in 2007. She had an ICD fitted in 2010 as a precaution, which was changed to an S-ICD in 2018. Julie retired from the NHS in November 2023 after 44 years service and has recently been elected a patient governor at Sheffield Teaching Hospitals NHS Foundation Trust. She is a Heart to Heart Support Volunteer for the charity and a patient representative on the BHF CureHeart project to find a cure for inherited cardiomyopathies.
Next meeting(s)
- Thursday 27th February 2025
- Time: 7-9pm
Online
Speaker: Dr Klaus Witte (Consultant Cardiologist Leeds Teaching Hospitals NHS Trust)
Topic: Research into Mitral Regurgitation in Cardiomyopathy and a Q&A session
Future meetings
Saturday 22nd March 11 - 1pm
In-person
Speaker TBC
Thursday 29 May 6:30-8:30pm
OnlineSpeaker: Sarah Salmons - Senior Psychological Wellbeing Practitioner
Sheffield Talking Therapies
Topic: Talking Therapies Presentation of Services including Q&A sessionSaturday 12 July 11-1pm
In-person
Speaker: Dr Oliver Watson
Consultant Cardiologist
South Yorkshire Inherited Cardiac Conditions Service
Topic: TBC- Thursday 25 September 6:30-8:30pm
Online Speaker/Topic TBC - Saturday 29 November 11-1pm
In-person Speaker/Topic TBC
In-person meetings are held at:
Venue:
Burton Hall
The Burton Street Foundation
57 Burton Street
Sheffield S6 2HH
Facilities
Wheelchair access, free parking, refreshments

For details of how to join this meeting, or for more information about this support group, please contact our Services team:
services@cardiomyopathy.org