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About cardiomyopathy
Newly diagnosed
What is cardiomyopathy?
Genetics and cardiomyopathy
Request an information pack
Types of cardiomyopathy
Arrhythmogenic (ACM)
Dilated (DCM)
Hypertrophic (HCM)
Left Ventricular Non-Compaction (LVNC)
Peripartum cardiomyopathy
Restrictive (RCM)
Takotsubo
Related disorders
Arrhythmias
Cardiac amyloidosis
Myocarditis
Haemochromatosis
Sleep apnoea
Heart failure
Treatments
Common types of medication
Herbal remedies, over-the-counter medicine and supplements
Having a device
Types of surgery
Information resources
Order information resources
Request resources for a hospital or GP
Look up a medical word
Living with cardiomyopathy
How we can help you
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ARVC (inc. ALVC & ACM) Online Support Group
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CRT Devices Online Support Group
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North London Support Group
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PPCM Online Support Group
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Newly diagnosed
What is cardiomyopathy?
Genetics and cardiomyopathy
Request an information pack
Types of cardiomyopathy
Arrhythmogenic (ACM)
Dilated (DCM)
Hypertrophic (HCM)
Left Ventricular Non-Compaction (LVNC)
Peripartum cardiomyopathy
Restrictive (RCM)
Takotsubo
Related disorders
Arrhythmias
Cardiac amyloidosis
Myocarditis
Haemochromatosis
Sleep apnoea
Heart failure
Treatments
Common types of medication
Having a device
Types of surgery
Information resources
Order information resources
Request resources for a hospital or GP
Look up a medical word
How we can help you
Speak to a nurse
Telephone Peer Support (Heart to Heart)
Support Groups
Our podcast
Cardiomyopathy UK National Conference
Families and young people
Parents, caregivers and family members
Support for carers
Young People
Lifestyle and exercise
Eating healthily
Keeping active
Emotional wellbeing
Getting support with your wellbeing
Get practical support
Benefits
Driving
Life insurance
Returning to work and your rights
Travel insurance
Getting better treatment
Our Change Agenda
Change Makers
Cardiac screening
Our positions on policy
Our work with parliamentarians
Raising awareness
Awareness campaigns
Cardiomyopathy symptoms
Share your story
Understanding more
Our national survey
Our research
Research partnerships
Take part in research
Future research priorities
For researchers
Fundraise
Take on a challenge
Do your own thing
Give in memory
Become a corporate partner
Clubs and Societies
Give a gift in your Will
Cardiomyopathy research appeal
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Find your volunteer role
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Contact us
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09 December 2024
Royal Pharmaceutical Society calls for Government action to tackle medicines shortages
Cardiomyopathy UK welcomes the report from the Royal Pharmaceutical Society, 'Medicines Shortages
Read on
News
03 December 2024
Becoming a research funder
In 2025 Cardiomyopathy UK will start funding research into cardiomyopathy. For over 30 years we have
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Support Groups
28 November 2024
December Support Group Meetings
Here you can find all the support group meetings we're holding through December, We're holding 13
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News
12 November 2024
How to manage in cold weather
During winter, cold weather can affect our body and people with heart conditions can notice that the
Read on
Resources
30 October 2024
Natriuretic Peptides
Two important endocrine (hormone) systems regulate our cardiovascular function, the Renin
Read on
COVID-19
22 October 2024
Autumn 2024 COVID-19 Booster Vaccination
Our Cardiomyopathy UK Specialist Nurse, Jayne, has answered some common questions about the autumn
Read on
Your stories
25 September 2024
Jane's Story
Earlier this year, Jane was diagnosed with hypertrophic cardiomyopathy (HCM) . Jane has shared her
Read on
Your stories
04 September 2024
Sophie's Story
Sophie was diagnosed with arrhythmogenic cardiomyopathy (ACM) in 2023. Sophie has shared how she
Read on
Your stories
09 August 2024
Sue's Story
Earlier this year, Sue took on the 73-mile Hadrian's Wall cycling challenge, raising £640 for
Read on
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About cardiomyopathy
Newly diagnosed
What is cardiomyopathy?
Genetics and cardiomyopathy
Request an information pack
Types of cardiomyopathy
Arrhythmogenic (ACM)
Dilated (DCM)
Hypertrophic (HCM)
Left Ventricular Non-Compaction (LVNC)
Peripartum cardiomyopathy
Restrictive (RCM)
Takotsubo
Related disorders
Arrhythmias
Cardiac amyloidosis
Myocarditis
Haemochromatosis
Sleep apnoea
Heart failure
Treatments
Common types of medication
Herbal remedies, over-the-counter medicine and supplements
Having a device
Types of surgery
Information resources
Order information resources
Request resources for a hospital or GP
Look up a medical word
Living with cardiomyopathy
How we can help you
Speak to a nurse
Telephone Peer Support (Heart to Heart)
Support Groups
Join a Facebook Group
Find a support group
ARVC (inc. ALVC & ACM) Online Support Group
Advanced Heart Failure (Towards Transplant) Online Support Group
Cardiomyopathy With Atrial Fibrillation Online Support Group
Birmingham & West Midlands Support Group
Bridgend Support Group
Bristol & Surrounds Support Group
Central London Support Group
Cheshire & Merseyside Support Group
Coffee & Catch Up
CRT Devices Online Support Group
DCM Online Support Group
Devon Support Group
East Anglia Support Group
Genetics & Cardiomyopathy Online Support Group
HCM Online Support Group
Hertfordshire & West Essex Support Group
ICD Online Support Group
Kent Support Group
LVNC/Hypertrabeculation Online Support Group
Leeds & York Support Group
Loved Ones Online Support Group
Medications & Cardiomyopathy Online Support Group
North East Support Group
North London Support Group
Northern Ireland Support Group
Oxfordshire Support Group
PPCM Online Support Group
Sheffield & South Yorkshire Support Group
South East Wales PPCM Support Group
South London Support Group
Sussex Support Group
Swansea Support Group
Takotsubo Online Support Group
West London (including Surrey & Middlesex) Support Group
West Scotland Support Group
Become a support group leader
Our podcast
Cardiomyopathy UK National Conference
Families and young people
Parents, caregivers and family members
Support for carers
Young People
Starting university, college or a new job
Support for you
Our Youth Panel
Lifestyle and exercise
Eating healthily
Keeping active
Emotional wellbeing
Getting support with your wellbeing
Get practical support
Benefits
Driving
Life insurance
Returning to work and your rights
Travel insurance
Our research & campaigns
Getting better treatment
Our Change Agenda
Change Makers
Cardiac screening
Our positions on policy
Our work with parliamentarians
Raising awareness
Awareness campaigns
Cardiomyopathy symptoms
Share your story
Understanding more
Our national survey
Our research
Research partnerships
CureHeart
Crucial Study
Take part in research
BRITISH Study
MyClimb Study
Future research priorities
For researchers
Support us
Fundraise
Take on a challenge
2024 Wolverhampton 10k
ASICS London 10k
Adidas Manchester Marathon
BHF London to Brighton Bike Ride 2024
Birmingham Running Festival
Bournemouth Half Marathon
Brighton Marathon 2025
Bungee Jumps
Cardiff Half Marathon 2023
Chase the Sun 5k & 10k
Cotswold Way Challenge
Edinburgh Marathon Festival
Great North Run
Hackney Half 2021
Hackney Half 2024
Hampton Court Palace Half
Inflatable 2.5k - 5k - 10k - 15k
Isle of Wight challenge
Jurassic Coast Challenge
Kiltwalks 2024
London Marathon 2025
London Winter Walk 2024
London to Brighton Challenge
London to Paris
Manchester Half Marathon
National Three Peaks Challenge
Paris Marathon 2025
Peak District Challenge
Royal Parks Half Marathon
Run Bournemouth
Run Locally
Run Solihull 2023
Run for All Sheffield 10k
Santa in the City 2023
Skydives
South Coast Challenge
Supernova London
Thames Path Challenge
Thames Path Challenge
Warwick Half Marathon 2024
Yorkshire Three Peaks
Do your own thing
Fundraising Resources
30-Day Challenge
Celebrate a special occasion
Bake a Difference
Bake a Difference at Home
Bake a Difference at School
Bake a Difference at Work
Give in memory
Create a Tribute Page
Funeral collections
Grief Support
Become a corporate partner
Clubs and Societies
Give a gift in your Will
Cardiomyopathy research appeal
Volunteer
Find your volunteer role
Enquire about volunteering
Stay in touch
Contact us
Read MyLife magazine
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"I have so much gratitude for my health, and for the sheer joy of running"
12 Days of Christmas Challenge
2021 ESC Guidelines updates for heart failure
A 25th anniversary for Patricia's heart transplant
A Bright Future Together
A Good Night's Sleep
A Statement on Evusheld
Amy's story: friendship, peer support and climbing mountains
An Update on Mavacamten
Are you ready for a challenge?
Autumn 2022 Covid booster
Autumn 2023 Covid 19 Booster vaccination
Autumn 2024 COVID-19 Booster Vaccination
Beating For Two
Becoming a research funder
Cardiomyopathy and the COVID-19 Vaccination
Cardiomyopathy and the COVID-19 Vaccine
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Celebrating three years of Coffee & Catch Up
Change the World of Cardiomyopathy - Our Urgent Appeal
Charity’s Update on COVID-19
Charlie's Story
Charlotte's Story
Chloe's Story
Christian Eriksen's cardiac arrest
Claire's Story
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Coping With Tiredness and Fatigue
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Coronavirus - update on our policies and services
Coronavirus Update
Coronavirus Update
Coronavirus
Covid-19 mRNA vaccines statement
CureHeart
Dougie and Pete - The Marathon des Sables
Emily's Story
Fasting During Ramadan
Fiona's Story
Getting your flu vaccine
Good luck Team Scouse - Remembering Alex ‘Scouse’ Pickett
Green light for first Cardiomyopathy Drug
Happy Volunteers' Week!
Hay fever and cardiomyopathy
How To Cope In Warmer Weather
International Womens Day - celebrating our founder
Introducing our new trustee, Libby Jarman
Jaana's Story
Jamie's Story
Jane's Story
Jane's Story
Jazmin's 30-day Challenge
John's Story
Karen's 30 Day Home Challenge
Karen's Story
Karen's Story
Kyren's Story
Lauren's Story
Lisa's Story
Lucy's Story
Mark's Story
Marty's Story
Mavacamten for Obstructive HCM approved for Scotland
Meet Tash
NICE recommends Mavacamten for Obstructive HCM in new draft guidance
NICE releases draft guidance for new treatment for chronic heart failure
Natriuretic Peptides
New Guidelines on Management of Cardiomyopathy
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New smartphone can interfere with ICD’s and pacemakers
Organ Donation Week
Organ Donation Week-'June and I count our blessings every day'
Organ Donation in England
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Our Support Group Meetings This Month
Our latest My Life magazine!
Paige's Story
Paul's guaranteed to get a runner's high
Positive results for new HCM drug
Queen's Birthday Honours list for Alison Fielding
Royal Pharmaceutical Society calls for Government action to tackle medicines shortages
Ruby's Story
Scotland gives green light for new cardiomyopathy drug
September Steps 2021 - Jodie's Story
Sophie's Story
Steph's story
Stephen's Story
Sue's Story
Tafamidis approved by NICE
The top ten research priorities for cardiomyopathy published
Third Place for Hollis in Himalayan 100 Challenge
Tim's Story
Tina's Story
Tony's Story
Tracy's Story
Walking 500 miles for Jenny
What to do if you can't get a GP appointment
Why you should give regularly
Wireless in-heart device
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Zai's Story
clone of John's story
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Coping with a diagnosis of cardiomyopathy
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ICD's- Your Questions Answered
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What is Cardiac Remodelling?
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