Living with cardiomyopathy can feel overwhelming. It can affect your body, emotions, and day-to-day life. But you don’t have to face it alone. At Cardiomyopathy UK, we know how powerful connecting with others who truly understand can be. Our peer support services, whether in-person or online, offer a safe space to share, learn, and feel supported.
Here’s how peer support could make a big difference for you:
Why cardiomyopathy can feel difficult
Cardiomyopathy doesn’t just affect your heart; it can take a toll on your emotions, too. Many people feel anxious, sad, or isolated after their diagnosis. These feelings are normal, but they can make life harder. That’s why finding support for both your mental and physical health is so important. Feeling better emotionally can help you manage your condition and stick to your treatment plan.
How peer support can help:
1. Feeling less alone
A cardiomyopathy diagnosis can feel isolating, but you don’t have to go through it by yourself. Peer support helps you connect with others who understand what you’re going through. Sharing your worries or celebrating small wins with people who “get it” can make you feel less alone and more confident.
2. Learning to manage your condition
Talking to others with cardiomyopathy can be a great way to pick up practical advice. You can learn how they manage symptoms, keep up with treatments, or navigate healthcare systems. These shared experiences can help you feel more in control of your own health.
3. Reducing stress and building resilience
Stress can make heart conditions worse, but peer support can help ease that burden. Sharing your feelings and hearing from others can make you feel calmer and more reassured. Feeling less stressed is good for your heart and your mind.
4. Improving your quality of life
Many people who join support groups say they feel happier and more supported. Knowing you’re part of a community, hearing helpful advice, and feeling understood can make life with cardiomyopathy much more manageable.
Which type of peer support is right for you?
In-Person Groups: If you enjoy face-to-face chats, in-person groups can help you feel connected and supported.
Online Groups: If it’s hard for you to travel or you prefer the flexibility of online options, virtual groups are a great choice. You can join from your home and connect whenever it suits you.
Heart to Heart One to One Support: You will speak to a Cardiomyopathy UK Telephone Heart to Heart Support Volunteer. All our volunteers have been through an extensive application process and have completed and passed the charity's mandatory online training course Heart to Heart is there to help you talk through any aspect of living with your condition.
How Cardiomyopathy UK can support you
We’re here to ensure no one with cardiomyopathy has to face it alone. Our friendly peer support groups are run by trained volunteers and staff who truly understand.
They offer a welcoming space where you can:
- Share your experiences with others.
- Learn tips and advice for managing your condition.
- Access helpful resources and expert guidance.
Ready to get started?
Whether you prefer meeting in person or connecting online, there’s a support group for you. Visit the Support Groups page on our website to find a group near you or join our online community.
Peer support is more than just a conversation - it’s a way to feel stronger, calmer, and more connected. Let’s face cardiomyopathy together.
Whether you have the condition yourself, or you care for someone who does, we're here for everyone affected by cardiomyopathy.