Our positions on policy

Our policy position statements

Our evidence underpins everything that we do. It means that our influencing and advocacy work can have as much impact as possible. 

We work on the issues that matter the most to our community of people affected by cardiomyopathy. All our policy positions are based on the experiences of people affected by cardiomyopathy and on robust evidence. We also use this evidence to respond to proposals and consultations from national and devolved governments, and other statutory agencies like NHS England, the National Institute for Health and Care Excellence (NICE) and the Scottish Medicines Consortium (SMC).

How we decide on our policy positions

We base our policy positions on different sources of evidence, including:

 

  • Our MyInsight survey, the national survey of people living with cardiomyopathy, family and carers.
  • Focus groups with members of our community.
  • Interviews with people affected by cardiomyopathy.
  • Published evidence such as journal articles and reports.